Ilizarov Fixator Discussion Forum |
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Taylor Spatial Frame
Started by Karl Cropper. East Yorkshire. England. |
Posted: September 28, 2009 at 01:09 | |
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Hi all I have posted on here before but thought I'd start a new thread since I now have the frame on. I've had my TFS on for five weeks now to fuse my ankle and straighten and lengthen my tib n fib. After just 3 weeks my leg was straight and I am now in the process of lenghtening it, since strarting this the pain has become more intense and night times are worse. I get muscle cramps and it's so painful it wakes me up, sleep is very little at mo but seeing surgeon on 30 September so will be asking him about this then Is anyone else suffering more pain at night? I agree with others who say you have to be strong willed as it can get you down at times and wish you didn't have it on. Keep the faith and hang on in there. Regards. Karl 742
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Re: Taylor Spatial Frame
Reply #1 by simon |
Posted: October 7, 2009 at 10:15 | |
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Hi Karl you should eat loads of bananas as they stop cramp and keep it elevated at night by puttin a brick under each leg at the bottom of your bed and this should help Simon 749
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Re: Taylor Spatial Frame
Reply #2 by Andre |
Posted: October 7, 2009 at 12:18 | |
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Yes, i have a TSF on, it sucks a night. I get 2 hrs sleep at most. 752
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Re: Taylor Spatial Frame
Reply #3 by Karl |
Posted: October 8, 2009 at 14:44 | |
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Thanks for All your advice guys, since posting the post things have got so much better. I visited my surgeon last week and he informed me I no longer need to adjust the length or straightness as it's all where it should be now so adjusters came off and normal bolts replaced them. Since I stopped moving it all the pain is almost gone. It's amazing I can tell you and I get sleep now :-) hope this gives you hope that there is an end in sight even though my frame is going to be on for another 7 months. 755
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Re: Taylor Spatial Frame
Reply #4 by Danielle |
Posted: December 15, 2009 at 21:18 | |
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Glad you are feeling better Karl, I know you are no longer suffering as much (thankfully) but in case anyone is looking at this for advice - change the time you are adjusting the frame as pain can be much more bearable during the day xx 820
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Re: Taylor Spatial Frame
Reply #5 by carolyn |
Posted: December 27, 2009 at 15:24 | |
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i have had this fixator on for almost nine wks.and ther is not one easy thing about it my pain was not all that bad.but trying to sleep is so bad .i sleep about 4hrs each nite .no weight bearing.might get cast on the next visit ..i hope this has been quite an experince.not one i want again .like to hear how one turnd out after its off many thanks6 830
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Re: Taylor Spatial Frame
Reply #6 by Amber |
Posted: December 29, 2009 at 21:07 | |
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good to hear your feeling better! I've had two frames each for about six months and I had barely any sleep during the first few months! I started to sleep with a pillow underneath it though or if I slept on my side one between my legs. It makes it catch less on things and means you get woken up less when you do get some sleep! 831
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Re: Taylor Spatial Frame
Reply #7 by Monique , Nelson New Zealand :) |
Posted: February 12, 2010 at 09:55 | |
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Hi Ya, I'm getting my frame on in 3 weeks and have two preschoolers, so I do hope it goes well, Thou seeing what ppl have written about sleep I am now worried , arghhh :) That was one of my main concerns, DO wish you all the best. Glad to have found a place on here to look at the real answers. So thanks :) 846
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Re: Taylor Spatial Frame
Reply #8 by jackie |
Posted: March 13, 2010 at 22:39 | |
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hi there im 32 was born with left clubfoot had lots of ops when i was 20 i had a liziafrv frame fitted cause i was 2inch shorter on my left side i lengthend my leg 2inch this took 12moths of turning it that frame was great did the job and wasnt as painfull as the taylor spatial frame i had on my foot when i was 30 to flattern my foot at the same time i had toes broke and strightend .the taylor frame was awful it hurt i didnt sleep and i regret having it on i now cant walk as far or stand on my foot im sure its that dont want put any one off cause everyone differant if theres anyone with clubfoot and in pain please get in touch. 876
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Re: Taylor Spatial Frame
Reply #9 by jackie |
Posted: March 13, 2010 at 22:47 | |
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sorry if im not very positive think i have wrote on wrong thread.everyone differant iv got clubfoot and seems be goin worse i dont have ankle i cant move my toes or foot had bout 14 ops on to correct it ... 877
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Re: Taylor Spatial Frame
Reply #10 by Monique Nicoll |
Posted: March 21, 2010 at 12:25 | |
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I have now had my frame on for two weeks, the pain is unbearable unless takng good drugs. I am having my leg lengthened and the ankle realigned as well as having the bow of my tibia corrected, I dont get much sleep and find the cramps very hard to deal with, I do hope this gets easier, doesnt seem too pleasant at the moment. I certainly understand now what most of you have written and do hope you all come right asap :) 881
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