Ilizarov Fixator Discussion Forum

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number of topics started (368) - Page 1 of 19
Bowlegs-Taylor Spatial Frame
Posted by Jess
Last Reply October 7, 2017 at 14:05
Started February 11, 2013 at 17:20
Hello everyone,

I have a congental bowleg condition (from knee down), it is not severe but it was
causing me a lot of pain all my life, and my doc told me i would have probably
needed knee replacement later in life if i didnt do anything about it. I am 25 years
old. Last week I had my first frame done on my left leg. Today is my first day
home from the hospital. I did the surgery in NYC. I just wanted to see if anyone
had similar condition and how did it go with them? Im getting my second leg
done on March 14th and im really worried my left leg wont be fully ready for it and
ill end up not being able to move at all with both frames on. How long does it
usually take for you to be able to bear weight on your leg, or be able to walk
without a walker pr crutches? If anyone could share their experience that woul be
great!

5 replies...

exogen bone healing system
Posted by dave chapman
Last Reply October 1, 2017 at 23:14
Started February 16, 2007 at 13:39
what a machine the exogen is... in short ive had a non union compound fracture of the tib n fib for almost 2 years ive had fixators casts and a lizzy frame with no luck and 7 weeks ago they started me on exogen treatment and wow !! in just 8 more weeks ill be free of this ilizarov for ever .my advice to anyone in the same boat as me tell your doctor to try the EXOGEN BONE HEALING SYSTEM it realy WORKS!
thank you mighty exogen you,ve saved my leg and my life


91 replies...

How do you walk on an installed foot plate!
Posted by Julie Barnes
Last Reply September 14, 2017 at 08:58
Started September 14, 2017 at 08:58
Hello:
My story is that I had a small lump
removed by my Podiatrist on Dec. 30 2016.
It was suppose to be a cyst but came back
as as a soft tissue Sarcoma.
(Myxofibrosarcoma to be exact). These are
really aggressive tumors so on Feb.14,
2017, my oncologist removed a large chunk
of my foot below the ankle on the outside
They had to do a skin flap and skin graft
to cover the giant hole. I was non weight
bearing for 6 weeks while they waited for
the grafts to heel enough. As soon as the
brace came off, I noticed that I could no
longer lift my foot you or move it side to
side. I also had to start radiation (33
treatments over all). They say that it
doesn't hurt but it was agony for me. It
felt I had acid thrown on that site daily.
The skin graft we're so fragile that they
would start breaking down to bloody pulp
by the second week of treatment. We ended
up having to stop and restart 3 days for
fear the grafts would completely die. I... read more

0 replies...

Removal
Posted by Rebecca Wilson
Last Reply August 16, 2017 at 01:11
Started August 16, 2017 at 01:11
Hi everyone, I've had my frame on for 7 weeks now. I have been told that I'm
going to have 2 of the pins removed on the 29th of August, I was wondering if this
is a good thing or not. I have seen people talk about a 'destruction process' and
was wondering if that's what this means. I'd also like to know if having the pins
removed is painful?
Thanks

0 replies...

ankle fusion
Posted by trina
Last Reply June 13, 2017 at 09:43
Started June 12, 2008 at 13:07
i hope some one can anwser my questions, i am due to have my ankle fused in my right leg, i am a 28 year female, slightly overweight and a smoker, i am going to have it done in stanmore in september. what i would like to know, is if i would have a normal gait after, would my leg be shorter than the other, would a be able to drive a manual car, as it is in my right leg, what is dancing like, would i be able to wear any type of heels, although i dont really mind as i am over 6ft already, what about going down stairs?? i really hope somebody could help me with some of these questions, i am so scared to go and have this op, and feels that i have no information.

245 replies...

Knee clicking
Posted by Dave
Last Reply April 19, 2017
Started November 17, 2016 at 23:51
Hi guys

I have two ilizarov frames on my tibias ive had them on for 3.5 months now. My
legs are badly atrophied ive lost 7.5" off my thigh and 4" muscle off my calves. I
was into bodybuilding so ive lost so much muscle

One thing that is concerning me hugely is that both my knee caps have started to
click when i extend my legs up and down. Ive read it may be because ive lost so
much quad size and also its causing a tracking issue.

Have any of you experienced this type of thing and did it go away one the frames
were removed?

Thanks

2 replies...

Pain
Posted by Anita Francis
Last Reply April 18, 2017 at 23:49
Started January 2, 2017 at 17:30
I have had my fixation on for 6 weeks. I broke left tibia and fibula lower left leg in
May 2016. I had to have a muscle flap on front of my lower leg due to break down
of all soft tissue. I was in a boot and weight bearing, but the bone displaced 26%.
I am now in a 3 ring fixation aid with 13 pins sites.

The bone has been teased back into place and I have been told to weight bear,
which I do. However the last few days the inside of my ankle and round above my
heel is really painful. My pain seems to move around. Does anyone else have
this?

1 replies...

It's all worth it in the end
Posted by Cloppie
Last Reply April 17, 2017 at 20:53
Started May 19, 2013 at 09:06
After 5 months 2 weeks and 1 day with a five ring Ilizarov frame on my right lower
leg, yesterday I had it removed. Almost impossible to see what was going on with
x-rays but a CT scan showed good connection on a complete break of the upper
tibia, so time to get this thing off my leg. The op took around one hour, I think
'cause I was under general, and came round with no frame. Two or three hours
recovery in a hospital bed and then discharged after a visit from the physio. The
difference is incredible. I could not walk properly with my frame on, even though
I was weight bearing in around 4-5 weeks. I had to use crutches to walk with any
real speed and the usual problems of stairs, showering and especially sleeping
persisted for the entire time I had the frame on. In just 24 hours since having it
removed I am walking normally, although my thigh muscles are struggling to
keep up, and I slept like a baby. I will post more blogs with some hits and tips I
us... read more

9 replies...

After care problems
Posted by Sandra
Last Reply April 9, 2017 at 15:21
Started April 9, 2017 at 15:21
Hi
I have a leg ulcer that won't heal in my second year
It is at the ankle point where my frame was anyone else experienced this
Tony

0 replies...

Moisturise or not to moisturise that is the q
Posted by Joero Uk
Last Reply January 30, 2017 at 16:06
Started December 24, 2016 at 14:33
Hi all I have a Ilizarov frame fitted for 4 months now and I'm told I have at least 2
months left to go, bone repair is proving to be slow and only now is the X-ray
showing some growth at the fracture sight, I have broken two pins aprox 4 weeks
ago to which the local A&E removed them by pulling them out after a phone call
with the consultant, at a later date two more were inserted under a local
anaesthetic. That aside I been able to shower clean my pin sites and keep the dry
skin under some control with a small stiff brush, so my question is after
showering is it ok to use moisturiser to make it look better as its looking very dry.
Any help advice greatly appreciated thanks

2 replies...

Improve Extension
Posted by Jack
Last Reply January 12, 2017 at 16:08
Started January 12, 2017 at 16:08
I had ACL surgery last year, and never regained full extension of my
leg. Dr. is suggesting Ilizarov. Has anyone used the IF for this
purpose?

0 replies...

Loose struts
Posted by Billy
Last Reply November 6, 2016 at 12:34
Started November 6, 2016 at 12:34
Hi all. I have a taylor spatial frame on my tibia and having done my
turns today i've noticed three of the six struts are loose - not taking
any weight at all. A fourth is near loose and the other two are solid.
I've checked and rechecked the prescription and all are where they
should be but i'm worried about the loose ones and it's Sunday so I
can't speak to anyone till tomorrow! Has anyone else experienced this??

0 replies...

Facebook group
Posted by Vicki Morrow
Last Reply October 8, 2016 at 16:58
Started April 24, 2016 at 14:26
I'm soon to be fitted with an external fixation frame and looking for support. Is the
Facebook group still running? How do I send a request to join or do I need to be
invited? Many thanks

3 replies...

Pain in ilizarov sites
Posted by Shah zaib
Last Reply September 29, 2016 at 13:40
Started September 29, 2016 at 13:40
Hi there i have bobe transport problem
they install ilizarov to me doctr told me
that you can yse crutches without putting
load when i tried to use i feel some real
pain that i cant bear i was unable to use
aids the frame is too heavy i wanna ask
that when i will be able to use aids
crutches and when will be pain reduce
Today is my 7 day of surgery
Plz guide me i will be thankfull

0 replies...

Taylor Spatial Frame
Posted by Katherine
Last Reply August 20, 2016 at 20:17
Started July 18, 2007
Does anyone currently have the taylor spatial frame on? is it better than the ilizarov? im getting it on in two weeks and the doctor made it sound like it was the better option. Well let me know about the frame, any information would be helpful :)

129 replies...

New ilizarov support page!!!
Posted by Stacey
Last Reply August 10, 2016 at 13:00
Started August 10, 2016 at 13:00
After months of wearing my cage with a million questions and noticing so many
people asking on this site for a support page, i have created one on facebook for
all!

Please visit Favebook: ilizarov support group or search @ilizarovsupport

Hope to see you all there! :)

0 replies...

Is this page still used
Posted by Rachael
Last Reply June 11, 2016 at 20:22
Started May 20, 2016 at 08:10
Hello again,

I posted a week or so again with no
response, is anyone still active or is
there another support group someone can
suggest. I'm feeling pretty isolated and
alone with my ilizarov frame journey. 😢

3 replies...

pain after removal years after
Posted by kei
Last Reply May 30, 2016 at 03:54
Started May 30, 2016 at 03:54
I am still in a lots of pain after 3 years . every pin site is still painful, has anyone experienced this and what can be done to help ease the pain

0 replies...

Bow legs correction - UK patient experience
Posted by Pavel Korsun
Last Reply April 21, 2016
Started June 9, 2010 at 10:09
Here you could look at video that describes UK patient experience and interviews regarding bow legs (genu varum) correction treatment (5 parts):
http://www.youtube.com/view_play_list?p=78E54058CDA71FA2

You could look at video that describes UK patient experience and interview in 1,5 years after bow legs (genu varum) correction treatment (2 parts):
http://www.youtube.com/view_play_list?p=F73D78EBC0B793EF

5 replies...

to do or not to do
Posted by Wendy
Last Reply March 25, 2016 at 10:29
Started February 8, 2016 at 07:14
In regards as to whether you should go through
with it - NO NO NO is my advice, I was told to
have a frame instead of knee replacement and the
frame was on for 3 months many complications,
loads of infections, after 9 months I still have
an infection and hole in my leg and my knee is in
exactly the same pain as it was before the frame
was fitted. Hope this helps

2 replies...

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