Ilizarov Fixator Discussion Forum |
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Welcome to the Ilizarov Fixator open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Please feel free to share your experiences of living with one of these Russian external frames holding you together!
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what to do
Posted by jimmy |
Last Reply September 2, 2010
at 12:58
Started June 6, 2010 at 21:59 |
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hi my son is 18 right leg 2 inches shorter than left been going to scottish rites hospital 14 years well now its time for ilizarov in 3 weeks my son is now having second thoughts and my wife and i also a little bit i have asked the doctors all these years what they would do and the pros and cons of having it done or not never got a direct answer any suggestions ty |
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5 replies... |
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Leg and Ankle Correction
Posted by Karl Cropper |
Last Reply September 2, 2010
at 12:47
Started August 29, 2009 at 09:57 |
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Hi all my name is karl and I live in the uk. When I was 16 I broke my ankle, tib and fib at the same time. It was placed in cast and when it came off it was deformed but I left it as had no pain. Now I'm 42 and suffered great pain and decided to have surgery, last Friday I had a ilizarov frame fitted, tib and fib broken and ankle also, the aim is to fuse the ankle and straighten the leg over 6 to 9 months. After surgery I couldn't believe the pain, after a week in hospital I am now home and the pain is controlable with painkillers. I'm on cructhes and bearing a little weight. Getting around is hard but easier day by day. I know it's going to be a long process but any tips, hints on clothing, footwear and general day to day living would be great. Chees Karl |
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15 replies... |
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ankle fusion
Posted by taf |
Last Reply September 2, 2010
at 12:37
Started September 1, 2010 at 23:18 |
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I am 28 and thinkin of having the operation. but I have been of work for a while and after the op I will need time to recover and during that time work will lay me off. So question is what benefits can I claim and can I claim disability. Its not the op im scared of its money after the op. And will i be able work after it. All comments will be appreciatedplease e mail me on taffy420@googlemail.com |
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1 replies... |
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ankle fusion
Posted by trina |
Last Reply September 1, 2010
at 23:07
Started June 12, 2008 at 13:07 |
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i hope some one can anwser my questions, i am due to have my ankle fused in my right leg, i am a 28 year female, slightly overweight and a smoker, i am going to have it done in stanmore in september. what i would like to know, is if i would have a normal gait after, would my leg be shorter than the other, would a be able to drive a manual car, as it is in my right leg, what is dancing like, would i be able to wear any type of heels, although i dont really mind as i am over 6ft already, what about going down stairs?? i really hope somebody could help me with some of these questions, i am so scared to go and have this op, and feels that i have no information. |
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23 replies... |
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Stamina RX is a top selling natural supplement
Posted by jackjonson |
Last Reply August 31, 2010
at 07:35
Started August 31, 2010 at 07:35 |
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0 replies... |
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MBT Shoes - Masai Barefoot Technology
Posted by Rob |
Last Reply August 27, 2010
at 09:45
Started February 17, 2007 at 10:02 |
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I saw a member of my surgeons team yesterday after having my latest x-ray on my recently fused ankle. He mentioned that having a rocker fitted to my shoes might help allow my walking to be more smoother. He also told me about MBT Shoes (Masai Barefoot Technology) that may do the trick too, having the rocker idea built into fashionable shoes. They are usually used for muscle toning. They are not cheap at about £129 but if they make a difference then it could be money well spent. Found a shop yesterday but they were moving location! Hope to try some out soon and will report back here now I get on. |
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9 replies... |
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Taylor Spatial Frame
Posted by Katherine |
Last Reply August 19, 2010
at 21:55
Started July 18, 2007 |
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Does anyone currently have the taylor spatial frame on? is it better than the ilizarov? im getting it on in two weeks and the doctor made it sound like it was the better option. Well let me know about the frame, any information would be helpful :) |
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87 replies... |
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Lack of Information about Ilizarov
Posted by Kristian |
Last Reply August 17, 2010
at 11:50
Started May 30, 2010 at 17:35 |
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Hello. I am 25years old... I am 5,9ft..I live in Denmark. ..And I feel that I am quite short. And Feel that I need to take this "ilizarov-operation". But I don't know how much money I have to give.. where I can do it... (where in US and which hospital in US?)And how long time is the process. Can someone who know this please help me? |
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3 replies... |
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exogen bone healing system
Posted by dave chapman |
Last Reply August 16, 2010
at 19:58
Started February 16, 2007 at 13:39 |
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what a machine the exogen is... in short ive had a non union compound fracture of the tib n fib for almost 2 years ive had fixators casts and a lizzy frame with no luck and 7 weeks ago they started me on exogen treatment and wow !! in just 8 more weeks ill be free of this ilizarov for ever .my advice to anyone in the same boat as me tell your doctor to try the EXOGEN BONE HEALING SYSTEM it realy WORKS! thank you mighty exogen you,ve saved my leg and my life |
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19 replies... |
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1 Month in Fixator
Posted by Abisola |
Last Reply August 6, 2010
at 14:10
Started July 24, 2010 at 04:52 |
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hello everyone i just had an external fixator for an ankle fusion and 2 other foot fusions i cannot easily remember to correct my club foot due to polio as a child in Nigeria. it's been a full month to today and though i am getting used to it, it gets really annoying not really going out, semi-sequestered to my room and not being able to sleep comfortably :/ i like my sleep, lol. i have been keeping up with the daily cleaning and i am using the exogen bone growth stimulator as well. i am nervous because my fixator is non-weight bearing and i accidentally stepped down it the other day (yikes!). now i don't know if it is just me freaking myself out but i am kinda nervous if did some damage (even had a bad dream about it, lol). next appointment is in a month to determine when it comes off, counting down the days! but once this heals (however long that will take) i'll be having leg lengthening surgery so another exfix, yay! i just wanted to see how things are going with others, i ca... read more |
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1 replies... |
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Advice For My Son !
Posted by Michaela Giles |
Last Reply August 6, 2010
at 10:57
Started February 26, 2008 at 20:06 |
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Hi, I'm new to this site, my son was diagnosed with Ewing Sarcoma (bone tumour) Nov 2006, he is now clear of the cancer as we know after having 8 inches of Tibia removed and a Fibula graft put in place, this was secured with plates and screws which then lead to severe infection and removal of the metalwork. He has been using the Exogen System for some time but this has made very little difference. The option now put to us at RNOH Stanmore is the Ilizarov system (of which type we are yet to find out). I've been reading all your stories on here and I find it very helpful, although I won't be showing most of it to my son, don't want to scare him!! Hope you don't mind me getting on to you now and again, i'm sure i'll have lots of questions for you in time. Thanks for reading this. Michaela & Bradley (18yrs) |
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5 replies... |
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Having my ankle fused n leg straightened
Posted by Karl |
Last Reply July 31, 2010
at 03:48
Started March 17, 2009 at 18:02 |
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Hello everyone :-) I have just visited the hospital today and been advised to have my ankle fused and my tabia and fibia broken to correct the alignment. Because of this I will be having a ilizarov fitted. This has all come about because I broke my leg and ankle when I was 16, I am now 42 and suffering from arthritis in the joint and n constant pain. My surgeon has advised me that this is the best option and I agree. Just have to wait for approval from the NHS then I'll be going in for the operation. Looking for advice and what lifeis like while having the ilizarov on. I've been told I will have it on for 6 to 9 months. Any advice much appreciated Thank you karl |
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8 replies... |
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Bow legs correction - UK patient experience
Posted by Pavel Korsun |
Last Reply July 30, 2010
at 13:44
Started June 9, 2010 at 10:09 |
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Here you could look at video that describes UK patient experience and interviews regarding bow legs (genu varum) correction treatment (5 parts): http://www.youtube.com/view_play_list?p=78E54058CDA71FA2 You could look at video that describes UK patient experience and interview in 1,5 years after bow legs (genu varum) correction treatment (2 parts): http://www.youtube.com/view_play_list?p=F73D78EBC0B793EF |
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1 replies... |
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extending frame over knee
Posted by Pablo |
Last Reply July 28, 2010
at 15:52
Started July 28, 2010 at 15:52 |
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My son is having surgery to extend his TSF over his knee to prevent further sublexing of the knee joint. Has anyone had this done what is the recovery like is it as bad as the initiall surgery. He had the TSF put on his femur a little over a month ago and was just starting to get moving around pretty good. |
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0 replies... |
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Taylor Spatial Frame services in Malaysia
Posted by Soo |
Last Reply July 26, 2010
at 19:57
Started July 1, 2010 at 03:10 |
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Hi. I am a Malaysian student currently studying in New Zealand. I have bow legs and am considering to undergo a corrective surgery in Malaysia when I return home during the summer break in New Zealand to fix my problem. May I know if anyone here knows of a hospital that offers this orthopedic surgery in Malaysia ? The Taylor Spatial Frame technique. Thanks kind regards Soo from Malaysia |
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1 replies... |
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blood rush!
Posted by andy m |
Last Reply July 18, 2010
at 20:41
Started July 18, 2010 at 17:26 |
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Hi everyone. Had my frame on for 4 weeks now, I am pushing hard for ankle movement which is improving. I do find however that unless i keep my leg raised, or when i stand with my crutches, i feel the blood rush to my leg causing it to really swell and cause pain and restrict my joint movement. Can anyone offer any advice on how to overcome this or what the likely timescale is before these type of symptoms reduce. Regards Andy m |
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1 replies... |
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Taylor Spatial Frame
Posted by Diane |
Last Reply July 17, 2010
at 23:56
Started July 17, 2010 at 23:56 |
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Hi It has been recommended that I have a TSF fitted I am 44 and have previously had a Ilizarov frame on but didn't manage to get the Tibia bone to heal. can you offer me any advise. mostly want to know what you found to be the most difficult things that you have had to deal with.. can anyone offer any advise on what to expect? how I can prepare best for it, most of all can you workwith it on?? Kindest Regards Diane |
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0 replies... |
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taylor spatial frame
Posted by graeme |
Last Reply July 17, 2010
at 22:52
Started July 12, 2010 at 01:57 |
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after having a serious fall off a ladder (25ft)on 17th may i suffered a left tibia/fibular compound fracture to my lower left leg, broken ankle and broken foot. i have now got a taylor spatial frame on which has been on for 6 weeks now. everything seems to be ok up to now, just wondering if anybody knows anything about showering with one on and is it normal NOT to start walking on it at this stage as it seems pretty common for people to walk on them by now cheers graeme |
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2 replies... |
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Taylor Spatial Frame
Posted by Tim |
Last Reply July 12, 2010
at 22:55
Started June 25, 2010 at 17:26 |
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My 13 year Old Daughter is scheduled to have a TSF out on her lower right leg in September. Doing it at Boston Childrens - Dr Kasser. She is undergoing lengthening (5/8") and straightening. We are told this is a 7 month process. I have two questions for anyone who can help. 1. Can you speak to the pain - how much? How long? 2. Is there any one piece of advice you wish you had been given prior to the operation. (Regarding sleeping, exercize, pin maintenence, whatever) Thank you T |
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2 replies... |
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Exogen System for Sale
Posted by James Puckett |
Last Reply July 9, 2010
at 22:29
Started July 9, 2010 at 22:29 |
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I used this system back in 2007 when I broke my femur in a motorcycle accident. It sped up my recovery by about 2-3 months since I was having a "delayed union" on the break. Anyways I have the system in the original bag with the original accessories and gel. I used about 15% of the bottle of gel. If anyone is interested in buying mine I can ship it to them if needed. Please email me at addison@mcsupercenter.com with any questions. |
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0 replies... |
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